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The Rare Star Awards – 2024


On the occasion of “DNA Day” & 10th anniversary, We are introducing the

“ORDI Rare Star Awards”

On April 25th, 5PM onwards 

Registrations are closed for the following categories

Individual Awards:
  • Role Model living with Rare Disease (Age group: 3 to 15yrs; 16 to 30yrs; 31 to 50yrs)
  • Rare Star – Genetic Counselor
  • Rare Star – Researcher & Scientist
  • Rare Star – Caregiver
  • Rare Star – Advocacy Leader
  • Rare Star – Volunteer
  • Rare Star – Lifetime Achievement
Organization / Institution Awards:
  • Rare Star – Health Innovation Startup (Less than 3 years from incorporation date)

Click here to browse all the photos

Upcoming Events

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

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