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Alagille Syndrome- Shambhavi Ravishankar

DISCOVERING HOPE

The day I realised what hope means was the day I realised that I have never known “good health” on a single day in my life, and that despite that fact, I have created my own normal and done things beyond even my wildest dreams! The things that normal people take for granted – such as getting older (celebrating a birthday), are things that bring me joy and delight. I revel in the fact that I have lived one more year and lived it to the fullest. This ability to choose joy, to find reasons to smile, to be open and try new things and to not hold myself back – that to me is hope, and is my greatest Rare Achievement. Not my career, financial independence and degrees.

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