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Cystic Fibrosis- AROUBA KABIR

Digging Deep

After 21 years of struggling with my condition, I finally got my diagnosis – Cystic Fibrosis. There were many dark days with doctors giving me not more the 6-7 years more to live. Today, in my 30’s, I am the oldest healthiest Cystic Fibrosis patient in India. I learnt to understand my body and what it needed, which resulted in a career change from being a journalist to a mental health and wellness specialist. Today, I am the founder of an organisation called Enso Wellness which not only helps people with rare diseases but also healthy people. We do this together by finding the best versions of themselves through yoga, therapies and counselling, These were all techniques I went through in my search for proper management strategies for my condition. I considered it my duty to share what I had learnt. This is my greatest Rare Achievement – taking the lessons from challenges and sharing it people like and unlike me.

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