Initiatives – Globally National Organization for Rare disorders (NORD) EURORDIS.org IRDiRC Orphanet Rare Diseases – European Commission Office of Rare Diseases Research(ORDR, NIH) Rare Health Exchange DIAHOME.org Rare Genomics Institute In Need Of Diagnosis (INOD) Syndromes Without A Name (SWAN) Online Mendelian Inheritance in Man Rare Diseases International
