Initiatives – India Birth Defects Registry of India(BDRI) Lysosomal Storage Disorders Supprot Society Metabolic Errors and Rare Diseases organization Association for Social and Health Advancement Hemophilia Foundation Sjogren’s India Pompe Foundation Muscular Dystrophy Foundation Alzheimers and Related Disorders Society Of India PIDPWS AMRITHAVARSHINI Rare Diseases And Disorders Rett Syndrome Foundation IPSPI Mumbai Marathon Association of Persons with Rare Eye Diseases ABLE Guardian CSIR Institute Of Genomics And Integrative Biology
