HYDERABAD: Telangana medical and health department is sitting on a rare disease policy and is yet to allocate its share for the treatment of rare disorders. According to the rare disease policy issued by the Union government, the Centre has allocated Rs 100 crore towards its 60% share and Telangana is yet to give its 40% share.
As rare diseases are not included in either state-sponsored insurance scheme, Arogyasri, or any private health insurance, it has become a financial burden for patients, as the costs run into lakhs of rupees.
Currently, patients are approaching courts for getting directions to the government-owned Telangana State Medical Services Infrastructure Development Corporation to bear the medical expenses. However, experts say approaching courts is cumbersome, and that the state government should implement the policy.
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