Kochi: Preethu Jayaprakash, 28, who became a Chartered Accountant by fighting the permanent disability arising out of the rare genetic disorder Spinal Muscular Atrophy (SMA), finally succumbed to her injuries...
World Vitiligo Day aims to raise awareness on #Vitiligo, a rare condition. Join us in breaking barriers and embracing the vitiligo warriors. #WVD2021. We appreciate the kind assistance of Ms....
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Ms. Shambhavi Ravishankar Shambhavi lives with a rare disease called Alagille Syndrome, which was diagnosed as a child. Her commitment to fighting for the rights of persons living with rare...
The month of May being Vasculitis Awareness month, ORDI takes this opportunity to spread awareness about this rare, but often serious autoimmune disorder-VASCULITIS and help the Vasculitis warriors in...
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
