Helpline
+91 8892 555 000
Email : contactus@ordindia.in

RD Advocate: Alagille Syndrome

Ms. Shambhavi Ravishankar 
Shambhavi lives with a rare disease called Alagille Syndrome, which was diagnosed as a child. Her commitment to fighting for the rights of persons living with rare diseases led her to study law. Shambhavi is a Felix Scholar and lawyer, qualified with a Masters in Human Rights Law from the University of Reading. She works in public policy and legal research and volunteers her time with rare disease organisations in India and the US.

 

Upcoming Events

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

Highslide for Wordpress Plugin