We must applaud ourselves. We must applaud ourselves because we have toiled and advocated the causes of affordable healthcare and access to drugs. We have fought for cancer and malaria...
The Foundation for Research on Rare Diseases and Disorders pegs the number of patients in India afflicted with one of more than 7,000 rare diseases at over 70 million. Attempting...
In 2009, the Hindi movie Paa was released to wide acclaim in India. Starring Amitabh Bachchan, Abhishek Bachchan and Vidya Balan, the film, which focused on a father-son relationship, told...
Michael Hauser,a Duke professor of medicine and ophthalmology, who collaborates with an eye institute in Hyderabad, India to study a childhood form of glaucoma, was quoted in a recent article...
– Daara Patel, Secretary General, Indian Drug Manufactures Association The pharma industry faces a huge problem due to the inverted duty structure, i.e. higher duty on inputs at 12 per...
Just because the Centre, State and AIIMS say they are short of funds Just because someone is short of funds, the State cannot allow him to die, the Delhi High...
Nearly 3.7 million of the 70 million suffering from rare diseases are from Karnataka A Hindi movie in 2009 depicted the poignant story of a child suffering from a genetic...
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
