Mangaluru, Feb 21: The Organization for Rare Diseases India (ORDI) is set to host the 10th edition of its flagship event, RaceFor7, in Mangaluru for the first time. This symbolic run...
The Organization for Rare Diseases India (ORDI), a national umbrella organization representing the collective voice of all patients with rare diseases in India has launched Savemylife, a crowdfunding platform to...
Dr Meenakshi Bhat, a pioneering clinical geneticist at the Centre for Human Genetics in Bangalore, and a long-time supporter of the rare disease community urged the government to make it...
Racefor7 has evolved into a pan India event, symbolizing the 7,000 known rare diseases with over 7,000 participants running 7 km. Since its inception in 2016 in Bengaluru, the initiative...
The Organization for Rare Diseases India (ORDI) announced the 10th edition of its flagship annual awareness run, Racefor7. The event marked the official launch of this year’s National poster and theme,...
Judge said the treatment of 18 patients had already begun and discontinuation of the treatment would have a negative repercussion on their health The Delhi High Court has refused to...
New Delhi: The Central government is set to launch a scheme to develop 12 indigenous drugs for eight rare diseases, health minister J.P. Nadda said on Monday. The programme aims...
A 14-year-old boy from Kerala’s Kozhikode who was infected with a rare brain disease, amoebic meningoencephalitis, has survived after undergoing treatment for three weeks. The disease, with a mortality rate...
