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Statement on the occasion of World Rare Diseases Day 2025 on behalf of -Working Group on Access to Medicines and Treatment.

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Race for 7 Sponsors 2026

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Karnataka Govt Plans Rare Diseases Policy To Support Patients

Karnataka Health Minister Dinesh Gundu Rao announced that the state’s Rare Diseases Policy will be released shortly, reaffirming the government’s commitment to strengthening support for patients living with rare conditions....

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Karnataka soon will have a state rare disease policy, health minister announces at ORDI’s 11th edition of Racefor7

Organization for Rare Diseases India (ORDI), a national patient advocacy organization committed to addressing challenges faced by people with rare diseases in India, hosted the 11th edition of its flagship...

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Karnataka Health Minister Dinesh Gundu Rao flags off Racefor7 11th edition

The Organization for Rare Diseases India (ORDI), a national patient advocacy organization committed to addressing challenges faced by people with rare diseases in India, hosted the 11th edition of its flagship...

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Duty Cuts Easy Imports, rare disease costs remain crushing nationwide

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Budget cuts import costs of certain cancer & rare disease drugs. Why it offers little relief to patients

New Delhi: Finance Minister Nirmala Sitharaman Sunday announced a full exemption from basic customs duty on 17 life-saving drugs including cancer drugs. She also included seven additional rare diseases that will now qualify...

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Duty exemption on rare disease drugs fails to address affordability crisis, says expert

Finance Minister Nirmala Sitharaman on Sunday, 1 February, announced duty exemptions on personal imports of drugs, medicines, and Food for Special Medical Purposes for seven additional rare diseases in the...

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Rare Diseases In India: Why Early Diagnosis Is Still The Biggest Missing Link

In a nation of over 1.4 billion people, the word “rare” can be very misleading. While each specific disease might affect only a small number of people, the total number...

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The silent epidemic. ‘Rare diseases aren’t rare, they’re orphaned’

Eight-year-old Krish Dev is recovering from a surgery performed to support his neck, as his body stopped growing even as his head continued to do so. Witty and sharp as...

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