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Statement on the occasion of World Rare Diseases Day 2025 on behalf of -Working Group on Access to Medicines and Treatment.

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Race for 7 Sponsors 2026

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Karnataka Govt Plans Rare Diseases Policy To Support Patients

Karnataka Health Minister Dinesh Gundu Rao announced that the state’s Rare Diseases Policy will be released shortly, reaffirming the government’s commitment to strengthening support for patients living with rare conditions....

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Karnataka soon will have a state rare disease policy, health minister announces at ORDI’s 11th edition of Racefor7

Organization for Rare Diseases India (ORDI), a national patient advocacy organization committed to addressing challenges faced by people with rare diseases in India, hosted the 11th edition of its flagship...

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Karnataka Health Minister Dinesh Gundu Rao flags off Racefor7 11th edition

The Organization for Rare Diseases India (ORDI), a national patient advocacy organization committed to addressing challenges faced by people with rare diseases in India, hosted the 11th edition of its flagship...

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Rare Diseases Affect 1 In 20 Indians: Doctor Explains Why Awareness Is The First Cure

Dr Sudheendra Rao N R from the Organization for Rare Diseases India reveals that approximately 70 million are affected by rare diseases and a majority of them are children. Rare...

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CSR Support from PHARMED

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Patient bodies seek Russia-like funding for rare diseases treatment

As Russian President Vladimir Putin concludes his visit to India, the Organisation for Rare Diseases India (Ordi), a national umbrella organisation representing patients with rare diseases, has asked the Centre...

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Race for 7 Press Release from daijiworld.com

Mangaluru, Feb 21: The Organization for Rare Diseases India (ORDI) is set to host the 10th edition of its flagship event, RaceFor7, in Mangaluru for the first time. This symbolic run...

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Press Release for Save my Life

The Organization for Rare Diseases India (ORDI), a national umbrella organization representing the collective voice of all patients with rare diseases in India has launched Savemylife, a crowdfunding platform to...

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