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Bangalore Miror: Mysterious orphan diseases kill 13k infants

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Rare diseases: It’s all about the fighting sprint, says survivor

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ವಿಜಯವಾಣಿ

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ಸುವರ್ಣ ಟೈಮ್ಸ್ ಆಫ್ ಕರ್ನಾಟಕ

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ಸಂಯುಕ್ತ ಕರ್ನಾಟಕ

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Eeandu

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Andhra Jyothi

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Bangalore Mirror

With a sizeable number of the 13,000-plus infant deaths per year in Karnataka being attributed to rare diseases, patient-support groups are demanding the implementation of the proposed Orphan Drugs Act...

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Pharma Biz

The Indian Society of Clinical Research (ISCR) and the Organisation for Rare Diseases India (ORDI) are alarmed about the lack of treatment option for 70 million rare disease patients in...

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Clinical trials imperative to bring relief to patients with rare diseases

– By Neelam M Kachhap The rare diseases causes a range of physical, cognitive and developmental disabilities and occurs in about one in 10,000 live births Recently Rare Disease Day...

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