...
The Government of India is in a perfect position to provide direction and support to meet the urgent unmet needs of the 70+ million rare disease patients, says Harsha K...
We here at Total Orphan Drugs, as part of this months focus on emerging markets for the orphan drug industry, have been speaking to Harsha K Rajasimha of the newly...
In an effort to make rare diseases diagnosable and curable. In an effort to make rare diseases diagnosable and curable an initiative Organisation for Rare Diseases India(ORDI) was lanuched by...
Through ORDI we will try to empower rare diseases patients and their families in India To bridge the demand supply gap and work as a catalyst that can bring about...
Families of patients will also be provided Counselling, Guidance. Help-Line: 8892 555 000 It will provide Counselling, guidance and critical...
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
