BENGALURU: The Organization for Rare Diseases India (ORDI) would organise Race for 7, a unique first of its kind event to commemorate Rare Disease Day and draw attention to the...
To draw attention to the needs of patients with rare diseases in India, the Organisation for Rare Diseases India (ORDI) will organise ‘Race for 7’, a 7-km run on February...
Four-year-old Kusuma of Subramanyapura is confined to the wheelchair, her body reduced to nothing more than an eggshell. When she was one, she developed Fibro Ossificans Progressiva (FOP), a genetic...
Children’s Day (Bal Divas) is celebrated on 14 November each year to mark the birthday of Jawaharlal Nehru the first Prime Minister of India who loved the company of children....
Sameena Ishaq from California and Mr Prasanna Kumar from ORDI interacts with doctors in manipal hospital on 9 july 2015. Sameena shared her story in diagnosing and managing her son...
