With a sizeable number of the 13,000-plus infant deaths per year in Karnataka being attributed to rare diseases, patient-support groups are demanding the implementation of the proposed Orphan Drugs Act...
The Indian Society of Clinical Research (ISCR) and the Organisation for Rare Diseases India (ORDI) are alarmed about the lack of treatment option for 70 million rare disease patients in...
– By Neelam M Kachhap The rare diseases causes a range of physical, cognitive and developmental disabilities and occurs in about one in 10,000 live births Recently Rare Disease Day...
With the country’s healthcare judging its patients by statistics, the Bengaluru-based Organisation of Rare Diseases India (ORDI) is drafting a state ‘orphan drug policy’ to aid those afflicted with ‘rare...
The rare diseases causes a range of physical, cognitive and developmental disabilities and occurs in about one in 10,000 live births Recently Rare Disease Day was observed by the Indian...
Karnataka Vision Group for Biotechnology (VGBT) and the Organization of Rare Diseases (ORDI) cordially invite you to a media briefing on Rare Diseases: Initiatives in Karnataka On the occasion of...
World Rare Diseases Day: VGBT and ORDI partner in Karnataka Bangalore: Around seventy million patients in India (three to four million in Karnataka) are affected with one of more than...
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
