Opinion: India Needs Policy To Ensure Funding, Patient-Friendly Diagnosis To Curb ‘Rare Diseases’ Rare diseases are called so because they occur in only a small portion of a country’s population....
click below Link: http://www.pharmabiz.com/NewsDetails.aspx?aid=135938&sid=1 Nandita Vijay, Bengaluru Saturday, March 6, 2021, 08:00 Hrs [IST] The Organisation of Rare Diseases of India (ORDI) has urged the Union government to increase the Rastriya...
Prasanna Shirol whose daughter suffers from a rare disease called Pompe, used his experience and knowledge in establishing rare disease centres in hospitals across India. Click below link:...
Prasanna Shirol used his experience accompanying his daughter for lengthy medical treatments to help establish rare disease centres in hospitals across India Like many rare disease advocates, he wants a...
ORDI – Excecutive Director – Mr Prasanna Shirol was a panalist in Asia Pacific Patient Innovation Summit 2021. Topic of the India Hub : “Establishment and governance of patient groups” ...
The event was held virtually, uniting over 4,000 participants from 200 cities across the country, to raise their voices for the rare disease community. BENGALURU : To raise awareness on...
Click Below Link: https://www.linkedin.com/pulse/rare-disease-day-india-7-reasons-rejoice-arjun-gupta/?trackingId= The first Rare Disease day was observed by EURODIS and many other nations on 29th February 2008 to raise awareness for rare diseases. The date was very thoughtfully...
Our executive Director – Mr Prasanna Shirol participated as a panalist in “Rare Disease Day-2021” Online “CME” 28th feb 2021. Organised by Govt Medical Collge – Kozhikode ( department of...
