Click for the article: https://www.indiatvnews.com/health/know-what-diseases-fall-under-rare-diseases-category-691930 Know what diseases fall under Rare Diseases category As the name suggests Rare Diseases are those that are less in occurrence than compared to other...
Parents whose only hope was For three years, Vidya tried to find the cause of her son’s recurrent fevers and low cognitive development. When she found out, she was devastated....
India does not have a healthcare policy for Rare Diseases in place, and whatever little benefits exist are only applicable for BPL Families, writes, Prasanna Shirol, Founder Director, ORDI Rare...
Click Below Link: Racefor7: Over 4000 participants virtually unite to raise awareness for rare diseases In the backdrop of 70 million rare disease patients in India, Organization for Rare Diseases...
Episode Description In this episode of the Lead, Prasanna Shirol from the Lysosomal Storage Disorder Support Society India talks about helping those affected by rare diseases. Ahmed Shariff: Hi and...
Opinion: India Needs Policy To Ensure Funding, Patient-Friendly Diagnosis To Curb ‘Rare Diseases’ Rare diseases are called so because they occur in only a small portion of a country’s population....
click below Link: http://www.pharmabiz.com/NewsDetails.aspx?aid=135938&sid=1 Nandita Vijay, Bengaluru Saturday, March 6, 2021, 08:00 Hrs [IST] The Organisation of Rare Diseases of India (ORDI) has urged the Union government to increase the Rastriya...
Prasanna Shirol whose daughter suffers from a rare disease called Pompe, used his experience and knowledge in establishing rare disease centres in hospitals across India. Click below link:...
Prasanna Shirol used his experience accompanying his daughter for lengthy medical treatments to help establish rare disease centres in hospitals across India Like many rare disease advocates, he wants a...
