Former India goalkeeper Prasanta Dora, who made a name for himself while playing for big three clubs of Kolkata Maidan, died on Tuesday. He was 44 and is survived by...
Congratulations to the entire team. Gene therapy started to Baby Fatima at Baptist Hospital...
On this episode, Pallavi chats with Prasanna Shirol about his daughter, Nidhi’s extremely rare disease, Pompe. Here’s an unbelievable story of the unimaginable. Can Inspire is Production of WYN Studio....
Good news and a novel FDA approved treatment for MPS- I Homologous stem cell therapy. Read more: https://www.globenewswire.com/news-release/2020/07/20/2064241/0/en/Orchard-Therapeutics-Announces-Orphan-Drug-and-Rare-Pediatric-Disease-Designations-for-OTL-203-for-the-Treatment-of-MPS-I.html #RareDisease #rayofhope #OrphanDrug...
An article from ” @ The Hindu” today on the scarcity/ unavailability of drugs for #RareDisease patients who are facing loss of #accesstomedicines due to #COVID; supply interruption of #importeddrugs is a threat to...
On the occasion of 7th DNA Day of VIT, 14th March 2020 by Department of Biomedical Sciences, Our Founder Director, Mr. Prasanna Shirol was invited to inaugurate the event as...
Organization for Rare Diseases India (ORDI) has highlighted the importance of creating awareness on Mucopolysaccharidosis (MPS), which is a category of a rare disease. MPS is a part of a...
