Over 70 million Indians suffer from rare diseases, the treatment cost of which runs into tens of lakhs every year, lifelong. Yet we don’t have a national policy to support...
Nearly 200 in Karnataka are diagnosed with the rare genetic disease A gene therapy costing ₹16 crore is the only shot of life for nearly 200 children with Spinal Muscular...
Article published in “New Karnataka” on 11th Feb 2021 about ORDI – Race for 7. This 6th edition and is Virtual this year Race for 7 is an annual mass “Awareness Run/Walk/Ride”...
Raring to go Run for a cause at this 7km race, where you can learn more about 7,000 rare diseases and the importance of diagnosing them early By Express News Service...
Race for 7 is an annual mass “Awareness Run/Walk/Ride” being organised on “World Rare Disease Day” on 28th February 2021 at 6.30 am....
Former India goalkeeper Prasanta Dora, who made a name for himself while playing for big three clubs of Kolkata Maidan, died on Tuesday. He was 44 and is survived by...
Congratulations to the entire team. Gene therapy started to Baby Fatima at Baptist Hospital...
On this episode, Pallavi chats with Prasanna Shirol about his daughter, Nidhi’s extremely rare disease, Pompe. Here’s an unbelievable story of the unimaginable. Can Inspire is Production of WYN Studio....
