Medical experts say India also needs an orphan drug policy to provide incentives to pharmaceutical companies to innovate and manufacture drugs for rare diseases...
For Maqsood Alam, saving his 20-month-old son, Ahsan, has become a personal challenge after he lost three of his children to Gaucher disease in the past. Ahsan, born in February...
Bangalore Baptist Hospital in association with ORDI – Organization For Rare Diseases, India, today inaugurated India’s very first Paediatric Neuromuscular Service, simply called “The Muscle and Nerve Clinic”. This specialty...
Organisation for Rare Disease India (ORDI), a non-profit patient association focusing on improving the health of patients with rare diseases, has taken the initiative to appeal to the...
New Delhi [India], Apr 21 (ANI): Organisation for Rare Disease India (ORDI), a non-profit patient association focusing on improving the health of patients with rare diseases, has taken the initiative...
Organisation for Rare Disease India (ORDI), a non-profit patient association focusing on improving the health of patients with rare diseases, has taken the initiative to appeal to the state governments...
New Delhi [India], Apr 21 (ANI): Organisation for Rare Disease India (ORDI), a non-profit patient association focusing on improving the health of patients with rare diseases, has taken the initiative...
WASHINGTON, March 8, 2018 /PRNewswire/ — Rain did not dampen spirits for those racing against rare diseases. Racefor7 supporters in Washington, D.C. were greeted with rainy skies on Feb. 25,...
