The Union health ministry has cited bureaucratic barriers and high costs to renege on its pledge to help treat patients, mostly children, with rare and expensive-to-treat diseases through a Rs...
One of the unfortunate realities of Indian society and governance institutions at large is the fact that there is not enough conversation on the lives of persons with rare disease....
Karnataka is the only state to have a Centre of Excellence for Rare Diseases at the government-run Indira Gandhi Institute of Child Health in Bengaluru. By Suraksha P Express News Service...
Washington DC: Call it the “Art of Giving to the motherland, the techies’ way”. After building America with their brains and grit, the Indian techies are going all out to...
Health experts Wednesday highlighted the need for an immediate call-to-action for the implementation of the National Policy for Treatment of Rare Diseases, stating that the patients were suffering and losing...
Medical experts say India also needs an orphan drug policy to provide incentives to pharmaceutical companies to innovate and manufacture drugs for rare diseases...
For Maqsood Alam, saving his 20-month-old son, Ahsan, has become a personal challenge after he lost three of his children to Gaucher disease in the past. Ahsan, born in February...
Bangalore Baptist Hospital in association with ORDI – Organization For Rare Diseases, India, today inaugurated India’s very first Paediatric Neuromuscular Service, simply called “The Muscle and Nerve Clinic”. This specialty...
