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RAISING AWARENESS FOR RARE DISEASES: RACE FOR 7 – A 7000 METER WALK FOR 7000 RARE DISEASES

Bengaluru, February 15, 2018: The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India, today announced...

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Raising Awareness for Rare Diseases: Race for 7

Bengaluru, February 15, 2018: The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India,...

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Raising Awareness for Rare Diseases: Race for 7

Bengaluru, February 15, 2018: The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India,...

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Organization for Rare Diseases India announces new edition of Race for 7 in Mumbai

Mumbai: The Organization for Rare Diseases India (ORDI), a non-profit organization with a mission to highlight and address the needs of the rare disease community in India, on Thursday announced...

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More funds sought for rare diseases patients

Bengaluru: The Organisation for Rare Diseases India (ORDI) organised a round table here on Friday to attract the attention of the state government on the plight of patients awaiting treatment. “The...

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Rare disease policy needs to be implemented immediately: Prasanna Shirol, Co- Founder & Executive Director, ORDI

In an interview with ETHealthworld, Prasanna Shirol, Co- Founder and Executive Director, Organization for Rare Disease India, Bengaluru, talks about the bottlenecks that still exist even after the formation of...

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Patients with rare, genetic disorders appeal for support

Lysosomal Storage Disorders (LSDs) are a group of over 50 rare, life-threatening, chronically debilitating diseases that occur due to the deficiency of specific enzymes in the body. With an aim...

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Rare disease educational brochure

Click here to view the Rare disease educational...

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Race For 7 – Rare Disease – Andhra Jyothy – Karnataka

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Run For A Cause

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