Bengaluru: The Organization for Rare Diseases India (ORDI), a non-profit organization committed to addressing the challenges of the rare disease community in the country, on Thursday announced the launch of 2017 Race...
Los Angeles, CA and Herndon, VA January 31, 2017. Rare Genomics Institute (RG) and the Organization for Rare Diseases India (ORDI) announced today that they are one of the recipients...
ORDIndia announces research collaboration with George Mason University, USA with the newly established center for the study of chronic metabolic and rare diseases (CSCMRD). ORDI co-founder, Dr. Harsha Rajasimha to serve...
He will turn two this October, but unlike other children his age Baby Haadi cannot sit up, make noises or eat. The little boy’s growth is severely delayed as he...
Online https://timesofindia.indiatimes.com/city/bengaluru/Rare-disease-patients-gather-for-the-third-time-appealing-for-treatment-to-the-state-government/articleshow/52270406.cms?from=mdr https://epaperbeta.timesofindia.com/Article.aspx?eid=31806&articlexml=Rare-disease-patients-make-a-fervent-appeal-to-15052016005018 https://article.wn.com/view/2016/05/14/Rare_disease_patients_gather_for_the_third_time_appealing_fo/ https://article.wn.com/view/2016/05/14/Rare_disease_patients_make_a_fervent_appeal_to_govt/ https://news.panchamithra.in/rare-disease-patients-make-a-fervent-appeal-to-govt https://www.nyoooz.com/bengaluru/465374/rare-disease-patients-gather-for-the-third-time-appealing-for-treatment-to-the-state-government https://www.nyoooz.com/bengaluru/465757/rare-disease-patients-make-a-fervent-appeal-to-govt https://karnataka.indiaeveryday.in/news-rare-disease-patients-gather-for-the-third-time-appealing-1162-2157451.htm https://realtime.rediff.com/news/meenakshi#!Rare disease patients https://www.thehindu.com/todays-paper/tp-national/tp-karnataka/spreading-awareness/article8602185.ece https://www.newindianexpress.com/cities/bengaluru/When-body-grows-in-fits-and-starts/2016/05/16/article3434338.ece https://www.bnnwebtv.com/admin/health_info.php?recid=445 https://www.newindianexpress.com/cities/bengaluru/When-body-grows-in-fits-and-starts/2016/05/16/article3434338.ece Pharma Biz –...
Rare Diseases affect thousands of families in India, and due to the snail’s pace of innovation and research in the country, families often have to watch their loved ones suffer,...
BENGALURU: Patients suffering from rare Mucopolysaccharidoses and other rare diseases and their families came together to appeal to the state government for providing treatment on the occasion of International Mucopolysaccharidoses...