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From Rs 77,000 to Just Rs 600: India Manufactures World’s Cheapest Drug to Treat Sickle Cell Anaemia

Akums Drugs & Pharmaceuticals, aligning with the Narendra Modi government’s vision of eliminating sickle cell anaemia, has slashed the price of its key drug by 99 per cent. The firm...

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ORDI Newsletter Feb 2024

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ORDI Newsletter Jan 2024

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COLLABORATE Summit 2023

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25...

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ORDI News letter Nov 2023

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ORDI Press Statement

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ORDI News letter Oct 2023

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ORDI News Letter Sept 2023

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ORDI News Letter August 2023

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New GAA mutations linked to infantile-onset disease

Three new mutations in the GAA gene were linked with heart disease and severe breathing problems in infants with infantile-onset Pompe disease (IOPD) in Malaysia, a study reports. “The novel mutations identified in this...

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