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ORDI News letter Nov 2022

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ORDI News letter Oct 2022

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Syndromes Without A Name (SWAN) Facilities For Rare Diseases: What Is SWAN? Is There A SWAN Facility In India?

Certain genetic conditions can cause symptoms in children that can’t yet be diagnosed, called Syndromes without a Name (SWAN). It is a term doctors sometimes use when children experience symptoms...

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ORDI News letter Sept 2022

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ORDI News letter august 2022

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Spreading hope about Spinal Muscular Atrophy Publication – Bangalore Mirror

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We care for SMA: Fighting Spinal Muscular Atrophy organised at Bangalore Baptist Hospital Publication – Shreyas Webmedia Solutions

August 29, 2022: The world over, August is commemorated as Spinal Muscular Atrophy (SMA) awareness month. SMA, a progressive disease that robs affected people of their ability to walk, breathe and swallow is the leading cause of inherited death in babies. It has an incidence of around 1 in 6000. Rare diseases...

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We care for SMA: Fighting Spinal Muscular Atrophy organised at Bangalore Baptist Hospital Publication – Business News This Week

August 29, 2022: The world over, August is commemorated as Spinal Muscular Atrophy (SMA) awareness month. SMA, a progressive disease that robs affected people of their ability to walk, breathe and swallow is the leading cause of inherited death in babies. It has an incidence of around 1 in 6000. Rare diseases...

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Bangalore Baptist Hospital teams up with ORDI to fight spinal muscular atrophy Publication – Pharmabiz

Bangalore Baptist Hospital teams up with Organization for Rare Disease India (ORDI) to fight spinal muscular atrophy. Globally the month of August is commemorated as spinal muscular atrophy awareness month....

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Fighting Spinal Muscular Atrophy organised at Bangalore Baptist Hospital Publication – WordPress

August is commemorated as Spinal Muscular Atrophy (SMA) awareness month. SMA, a progressive disease that robs affected people of their ability to walk, breathe and swallow is the leading cause of inherited death in babies. It has an incidence of around 1 in 6000. Rare diseases like SMA are difficult to...

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