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ORDI News letter august 2022

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Spreading hope about Spinal Muscular Atrophy Publication – Bangalore Mirror

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We care for SMA: Fighting Spinal Muscular Atrophy organised at Bangalore Baptist Hospital Publication – Shreyas Webmedia Solutions

August 29, 2022: The world over, August is commemorated as Spinal Muscular Atrophy (SMA) awareness month. SMA, a progressive disease that robs affected people of their ability to walk, breathe and swallow is the leading cause of inherited death in babies. It has an incidence of around 1 in 6000. Rare diseases...

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We care for SMA: Fighting Spinal Muscular Atrophy organised at Bangalore Baptist Hospital Publication – Business News This Week

August 29, 2022: The world over, August is commemorated as Spinal Muscular Atrophy (SMA) awareness month. SMA, a progressive disease that robs affected people of their ability to walk, breathe and swallow is the leading cause of inherited death in babies. It has an incidence of around 1 in 6000. Rare diseases...

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Bangalore Baptist Hospital teams up with ORDI to fight spinal muscular atrophy Publication – Pharmabiz

Bangalore Baptist Hospital teams up with Organization for Rare Disease India (ORDI) to fight spinal muscular atrophy. Globally the month of August is commemorated as spinal muscular atrophy awareness month....

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Fighting Spinal Muscular Atrophy organised at Bangalore Baptist Hospital Publication – WordPress

August is commemorated as Spinal Muscular Atrophy (SMA) awareness month. SMA, a progressive disease that robs affected people of their ability to walk, breathe and swallow is the leading cause of inherited death in babies. It has an incidence of around 1 in 6000. Rare diseases like SMA are difficult to...

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We Care For SMA: Fighting Spinal Muscular Atrophy Organised At Bangalore Baptist Hospital Publication – Silicon Village

We Care For SMA: Fighting Spinal Muscular Atrophy Organised At Bangalore Baptist Hospital The world over, August is commemorated as Spinal Muscular Atrophy (SMA) awareness month. SMA, a progressive disease...

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Initiatives by the Government for treatment of rare diseases

Eight Centres of Excellence (CoEs) have been identified for diagnosis, prevention and treatment under National Policy for Rare Diseases 2021 Provision for financial support of up to Rs. 50 lakhs...

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ORDI News letter July 2022

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MOUwith TIGS

Organization for Rare Diseases India (ORDI) and Tata Institute for Genetics and Society (TIGS) have exchanged the MOU. TIGS Director Dr.Rakesh Sharma and ORDI’s CO-founder & Executive Directr Mr.Prasanna Shirol,...

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