The total amount of donations channelled to the rare diseases portal is Rs 1.18 lakh till date, Bharti Pravin Pawar, minister of state for health and family welfare, told the...
In places like Saharanpur and Buldhana, a rare genetic disease has been taking away control of bodies, lives and livelihoods from entire neighbourhoods. Against all odds, a few scientists and...
The genomic research company claims that VarMiner is powered by certain tools and databases to provide deeper insights into genetics with extreme accuracy and efficiency. MedGenome Labs, a genomics research...
1 The Hans India https://www.thehansindia.com/news/cities/bengaluru/racefor7-2022-sees-heart-warming-turnout-in-support-of-rare-diseases-731133 2 News Experts https://www.newsexperts.in/racefor7-2022-sees-heartwarming-turnout-in-support-of-rare-diseases/ 3 The Hindu https://www.thehindu.com/news/national/karnataka/top-karnataka-news-developments-today/article65089636.ece 4 Bangalore Mirror https://bangaloremirror.indiatimes.com/bangalore/cover-story/rare-window/articleshow/89877460.cms 5 APN News https://www.apnnews.com/racefor7-2022-sees-heartwarming-turnout-in-support-of-rare-diseases/ 6 Business News This week http://businessnewsthisweek.com/health/racefor7-2022-sees-heartwarming-turnout-in-support-of-rare-diseases/ 7 Online Media...
Swamy C. J., the Head of Operations at ORD (Organization for Rare Diseases) India, had this to say about their experience as a part of the project, “Since ORD focuses...
The Delhi High Court has recently voiced their disapproval of the continued neglect for the treatment of rare diseases. The Court took issue with the fact that funding for treatment...
The International Rare Diseases Research Consortium (IRDiRC) is a global collaborative initiative launched in 2011, aimed at tackling rare diseases through research. Here, we summarize IRDiRC’s vision and goals and...
