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Calcutta HC allows abortion at 34 weeks

A medical board was formed at SSKM Hospital, which endorsed the termination appeal. KOLKATA: The Calcutta high court on Thursday allowed a 37-year-old woman to medically terminate her pregnancy at...

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Centre’s crowdfunding for rare diseases not a hit with public, yet a ray of hope for many

Many believe that lack of provision for tax benefits has kept people from donating Waiting in vain for his treatment to begin at the Capital’s Maulana Azad Medical College (MAMC),...

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Project Prarambh: Initiative by IIDE to Digitally Transform the Non-Profit Sector

Swamy C. J., the Head of Operations at ORD (Organization for Rare Diseases) India, had this to say about their experience as a part of the project, “Since ORD focuses...

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Delhi High Court Weighs In On Dare Disease Treatment

The Delhi High Court has recently voiced their disapproval of the continued neglect for the treatment of rare diseases. The Court took issue with the fact that funding for treatment...

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Delhi HC Directs Centre To Issue Communications To AIIMS, Centres Of Excellence To Start Treatment Of Children Suffering From Rare Diseases.

The Delhi High Court has directed the Centre to issue communications to the All India Institute of Medical Sciences (AIIMS) and Centres for Excellence established across the Country, for starting...

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India Newswire: Rare chickenpox deaths in Karnataka, Leprosy situation

Two children have died of chickenpox and three others are taking treatment for it at Nalwar Station Thanda in Kalaburagi district. Leprosy situation in India Leprosy, caused by the bacteria...

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Ask AIIMS to start treatment for rare diseases: HC tells Centre

New Delhi, Feb 2 (PTI) The Delhi High Court has directed the Centre to communicate to the All India Institute of Medical Sciences (AIIMS) as well as to other Centers...

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Research on rare diseases: ten years of progress and challenges at IRDiRC

The International Rare Diseases Research Consortium (IRDiRC) is a global collaborative initiative launched in 2011, aimed at tackling rare diseases through research. Here, we summarize IRDiRC’s vision and goals and...

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Advances in Treating Gaucher Disease: Where does India Stand?

India, which shares 17% of global population, has finally had its first dedicated policy on making treatment of rare diseases accessible and affordable. by Dr. Dipanjana Datta While rare diseases are...

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Father-Daughter Duo Double Up to Find FSHD, Rare Disease Cures

When his daughter, Meredith Huml, was diagnosed — finally — with facioscapulohumeral (FSHD) muscular dystrophy in 2004, Raymond Huml immediately jumped into action, researching everything he could about the disease and reaching...

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