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Off Balance

In places like Saharanpur and Buldhana, a rare genetic disease has been taking away control of bodies, lives and livelihoods from entire neighbourhoods. Against all odds, a few scientists and...

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MedGenome launches AI-enabled VarMiner to detect genetic variants for rare diseases, inherited cancers

The genomic research company claims that VarMiner is powered by certain tools and databases to provide deeper insights into genetics with extreme accuracy and efficiency. MedGenome Labs, a genomics research...

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ORDI March 2022 Newsletter

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Children With Rare Diseases: Kerala HC Asks Centre to Act Favourably

KOCHI: The Kerala high court has asked the Union government to take a favorable decision on the state government’s request for making three government medical colleges providing treatment for children with...

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Race For 7 Event Consolidated Media Report

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Race For 7 Event Media Reports

1 The Hans India https://www.thehansindia.com/news/cities/bengaluru/racefor7-2022-sees-heart-warming-turnout-in-support-of-rare-diseases-731133 2 News Experts https://www.newsexperts.in/racefor7-2022-sees-heartwarming-turnout-in-support-of-rare-diseases/ 3 The Hindu https://www.thehindu.com/news/national/karnataka/top-karnataka-news-developments-today/article65089636.ece 4 Bangalore Mirror https://bangaloremirror.indiatimes.com/bangalore/cover-story/rare-window/articleshow/89877460.cms 5 APN News https://www.apnnews.com/racefor7-2022-sees-heartwarming-turnout-in-support-of-rare-diseases/ 6 Business News This week http://businessnewsthisweek.com/health/racefor7-2022-sees-heartwarming-turnout-in-support-of-rare-diseases/ 7 Online Media...

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Calcutta HC allows abortion at 34 weeks

A medical board was formed at SSKM Hospital, which endorsed the termination appeal. KOLKATA: The Calcutta high court on Thursday allowed a 37-year-old woman to medically terminate her pregnancy at...

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Centre’s crowdfunding for rare diseases not a hit with public, yet a ray of hope for many

Many believe that lack of provision for tax benefits has kept people from donating Waiting in vain for his treatment to begin at the Capital’s Maulana Azad Medical College (MAMC),...

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Project Prarambh: Initiative by IIDE to Digitally Transform the Non-Profit Sector

Swamy C. J., the Head of Operations at ORD (Organization for Rare Diseases) India, had this to say about their experience as a part of the project, “Since ORD focuses...

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Delhi High Court Weighs In On Dare Disease Treatment

The Delhi High Court has recently voiced their disapproval of the continued neglect for the treatment of rare diseases. The Court took issue with the fact that funding for treatment...

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