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Kerala Government offer help to bedridden youth

Click below link to know more information https://timesofindia.indiatimes.com/city/thiruvananthapuram/kerala-government-offers-help-to-bedridden-youth/articleshow/80719363.cms...

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5L patients of rare disease, treatment costs in crores; govt lacks budget: HC told

New Delhi, Feb 4 () The Delhi High Court was informed on Thursday by the Ministry of Health that there are over five lakh patients suffering from rare disease Duchenne...

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Don’t have funds to treat 5 lakh suffering from rare form of muscular dystrophy, health ministry tells HC

The Centre on Thursday informed the Delhi high court that it does not have the budget to treat over five lakh people suffering from a rare disease, Duchenne muscular dystrophy...

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Need of rare disease policy

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Awareness for Alport Syndrome

Help us Raise Awareness for Alport Syndrome, a Rare Inherited Disorder that progressively affects the life of those affected. Care for Rare, Participate in spreading awareness and...

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Finalise policy on rare diseases by March 31 published in Thehindu

In draft policy govt. has proposed crowd-funding for treatment of high-cost rare diseases The Delhi High Court on Thursday directed the Centre to finalise the National Health Policy for Rare...

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Woman Undergoes Robotic Surgery For Rare Disease In Delhi

Click Below Link https://www.ndtv.com/india-news/woman-undergoes-robotic-surgery-for-rare-disease-in-delhi-2360115 The patient presented with a history of hoarseness of voice and swelling in the neck that had developed two months ago, according to Arun Prasad, a...

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Finalise policy on rare diseases by March 31: HC to Centre published in outlookindia

New Delhi, Jan 28 (PTI) The Delhi High Court on Thursday directed the Centre to finalise by March 31 its new National Health Policy for Rare Diseases of 2020 and...

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Former India goalkeeper Prasanta Dora dies of Rare Disease

Former India goalkeeper Prasanta Dora, who made a name for himself while playing for big three clubs of Kolkata Maidan, died on Tuesday. He was 44 and is survived by...

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ORDI brings you its annual event “Race For 7” on 28th February 2021

ORDI brings you its annual event “Race For 7” on 28th February 2021 through a Virtual platform creating awareness on Rare Diseases. You can Run/Walk from whichever place that you...

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