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Virtual consultation on rare diseases held by PPHF

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Unhappy with draft of rare diseases 2020 Policy

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Today being Garrod’s Day, let’s be a part of awareness of Alkaptonuria.

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Digeorge Syndrome Day

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Pancreatic Cancer Awareness Day

Today is Global Pancreatic Cancer Awareness Day. There are fewer than 1 million cases reported per year in india alone. This type of cancer is often detected late and has...

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Karnataka Students with Rare Disease to get 2 hours more for exam

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World Prematurity Awareness Day

  While ” Prematurity” at birth is common, it is important to have increased awareness on the possible preventive measures. Genetic factors may play a role in predisposition of certain...

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Every breath counts: India’s fight against pneumonia

Pneumonia is a pox on the house of public health worldwide – especially where children are concerned. In 2017 alone, the disease killed 2.56 million people worldwide. Of these, almost one-third...

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First time in India, Pompe patient gives birth to healthy baby

For the first time in India, a Pompe patient has successfully given birth to a healthy baby. Pompe disease is a Lysosomal Storage Disorder (LSD), a serious chronic, debilitating condition,...

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Genetic Counselor Awarness Day

Genetic counseling has grown drastically in the past decade. Genetic counselors play a significant role by not just helping the patient but also taking care of the entire family. Join...

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