September 9th serves as International Fetal Alcohol Syndrome Awareness Day. Oftentimes, the best judgment for some pregnant women may become hazy due to the love for alcohol; ignorant of it”s...
The overarching goal of ORDI is to advocate for mandatory Newborn Screening Across India. Let’s come together; contribute to the most precious thing, a baby’s smile & a better future!...
8th September is the Cystic Fibrosis Awareness Day which is meant not only to empower the ones suffering from it but also to spread awareness on CF. Join hands with...
While it is known so well that DMD affects more boys than girls, the Rare Disease segment must also bring its focus for the management, treatment of DMD in the...
~ Team of experts at Gleneagles Global Health City successfully performed Complicated Surgery amid COVID Pandemic ~ September 05, 2020 06:24 AM Eastern Daylight Time CHENNAI, India–(BUSINESS WIRE)–A 16 years...
World DMD day is celebrated every year globally to spread awareness about one of the most common type of muscular dystrophy, inherited genetically. On this day, ORDI stays in solidarity...
5th September is Pierre Robin Awareness Day. You may or may not have heard of it; the disease is uncommon. Let’s join hands and send them some love #careforrarebringsmiles We...
5th September is Pierre Robin Awareness Day. You may or may not have heard of it; the disease is uncommon. Let’s join hands and send them some love We appreciate...
Urgent policy attention is required for quality care Improving access to drugs for treating rare diseases and critical-care conditions is of paramount importance. Although the draft National Policy for Rare...
This August let us be aware about the rare, Spinal Muscular Atrophy, one of the leading genetic cause of death in babies under the age of two.Join hands with Organization...
