1st October: Rett Syndrome Awareness Day
October 1st being Rett Syndrome Awareness day. It is a Rare Genetic condition that predominantly affects girls. Let us join hands with @ordindia in creating awareness about this extremely rare condition.
We appreciate the kind assistance of Ms. Sayoni Chatterjee, MSc BMG, VIT, Vellore for the poster on Rett Syndrome.
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
