21st of June marks as the special day of recognition of ALS, a neurodegenerative disease that affects people in every part of the globe. It does not discriminate on the...
With Share something Saturday we officially wrap up Rare Chromosomal Disorder Awareness week. Today is the day to talk, whether it be your personal experiences or something that you are...
The purpose World Sickle Cell Day is to improve public awareness about this Rare genetic disease. This day is celebrated to improve treatment outcomes of sickle cell disease through early...
Today is the day to take charge and follow your passion. Do something that you have been waiting to do for a long time. Share your motivations with us. #RareandMotivated...
Today’s the day to use all the resources we have in hand – reference books, news articles, and the whole internet – to learn more about rare chromosomal disorders, and...
Today is Teamwork Tuesday! Get closer to your family and friends! Use your creativity to draw/write/ share pictures . Tell us what a day in quarantine is like for you...
Today’s theme for our Rare Chromosomal Disorder Awareness Week is – MEDIA MONDAY ! 🎥 Today We encourage everyone to watch movies or listen to music performed by artists who...
Every drop counts! We salute the life saving warriors who wholeheartedly donate blood and understand the value of a life. #worldblooddonorday #everydropcounts #giftoflife We appreciate the kind assistance of...
June is Scleroderma Awareness month, with June 29 being World Scleroderma Day. Sclero generally means hard and derma means skin. But the hardening of skin is just one of many...
Transverse myelitis is a rare disease that causes inflammation on both sides of one section of the spinal cord; often damages the insulating material covering nerve cell fibers (myelin). The...
