The Government of Kerala had initially identified 3 nodal centers for the treatment of rare diseases across Kerala and additionally sanctioned an initial corpus of 50 Lakhs to initiate the...
I vaguely remember my childhood and I remember the episode of breathlessness, coughing, getting tired, waking up early and lot of stomach upset. And in my school years, I remember few...
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Despite court orders, Tamil Nadu is yet to roll out life-saving ERT Nine-year-old Praveen (name changed), suffering from a rare disorder, is awaiting the State government’s nod to avail of...
Vasan Bala’s upcoming directorial Mard Ko Dard Nahi Hota took the inspiration from a kid at a dentist’s clinic. While the name of the film takes us back to 1985’s...
City doctors rescue 13-year-old Mauritian from rare genetic disorder City doctors gave Ciara, a 13-year-old-girl from Mauritius, suffering from a rare Complement Deficiency genetic disease, a new lease of life. Suffering...
Chennai: Having 95 patients registered with rare disorders at the Institute of Child Health and Hospital for Children (ICH & HC), patients are awaiting policy-level changes to avail of treatment...
It is possible to live a fairly normal life with a rare disease, may be difficult but certainly not impossible. While most of us don’t know much about rare diseases,...
New Delhi [India], Mar 14 (ANI): It is possible to live a fairly normal life with a rare disease, may be difficult but certainly not impossible. While most of us...
