A recent international symposium in New Delhi on wheat-related disorders drew attention to celiac disease, one of the world’s most under-diagnosed medical conditions. AS a person with celiac disease, the...
In order to cut prices of patented medicines for cancer and rare diseases, a high-level government panel has made a series of far reaching recommendations including granting “compulsory license” to any Indian...
“In more than two decades, I have come across just three such cases. This is a very rare syndrome present from birth where the patient fails to automatically breathe,” the...
A full bench of the Kerala High Court has held that sales tax cannot be levied for medicines, implants, and other consumables used as part of a surgical procedure or...
Every country has its own challenge when it comes to addressing the rare disease policy, said Prasanna Kumar B Shirol, co-founder and Executive Director of Organization for Rare Diseases in...
Image Credits: Navodaya Times One year after the Centre had announced Rs 100 crore special fund for the children suffering from rare disease under National Policy on Treatment of Rare Diseases...
Inborn errors of metabolism can easily be detected at an early stage through the test and diseases can be prevented even before their symptoms appear. New Delhi: The doctors working in...
Doctors in the national capital have pitched for mandatory newborn screening (NBS) in the country stating Inborn Errors of Metabolism (IEM), often referred to as congenital metabolic diseases or inherited...
