“Provide us treatment or grant us mercy killing.” That’s what patients suffering from ‘Handigodu’, a rare joint disorder, plan to ask the chief minister and the State Human Rights Commission. The Handigodu...
In a study that could help find the cure to muscular dystrophy, scientists from Centre for Cellular and Molecular Biology (CCMB) have decoded how proteins work inside the body to help regenerate...
One of the unfortunate realities of Indian society and governance institutions at large is the fact that there is not enough conversation on the lives of persons with rare disease. With discrimination rife...
A 10-member committee, formed to draft a revised policy, has not held a single meeting yet More than 70 million people across India suffering from rare diseases do not have...
The policy was approved in May 2018 but no patients have received aid under its provisions. Now the government wants to reframe it. Seven-year-old girl with fibrodysplasia ossificans progressiva, a...
The Centre has told the Delhi High Court that it did not allocate an initial corpus for treatment of life-threatening diseases under the National Policy on Treatment of Rare Diseases...
The Central government has filed an affidavit in the Delhi High Court, underlying need to re-frame the policy for rare diseases which was finalised and approved last year. The Centre...
The Central government has filed an affidavit in the Delhi High Court, underlying need to re-frame the policy for rare diseases which was finalised and approved last year. The Centre...
