One of the unfortunate realities of Indian society and governance institutions at large is the fact that there is not enough conversation on the lives of persons with rare disease....
Karnataka is the only state to have a Centre of Excellence for Rare Diseases at the government-run Indira Gandhi Institute of Child Health in Bengaluru. By Suraksha P Express News Service...
By Jung Hae-myoung Starting next year, more patients battling rare diseases will pay less for their medical expenses, as 100 disorders have been newly added to the government’s subsidy list,...
Farber disease is a rare, autosomal-recessive disorder caused by a mutation in the acid ceramidase gene, which leads to accumulation of sphingolipids in various tissues.1 It typically presents with a combination...
Washington DC: Call it the “Art of Giving to the motherland, the techies’ way”. After building America with their brains and grit, the Indian techies are going all out to...
Chinese scientist He Jiankui speaks at the Second International Summit on Human Genome Editing in Hong Kong on November 28, 2018. The announcement of the birth of babies with edited...
The ministry of health and family welfare that is getting continuous requests from patient organizations for funds has reached out to the finance ministry seeking financial help. New Delhi: Several...
In 2012, Ethan Perlstein challenged the academic status quo. Now as CEO of the start-up Perlara, can he do the same for the biotech industry? In 2012, molecular biologist Ethan...
