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Free Treatment For Children Suffering Rare Disease, Delhi HC Sends Notice To Centre, AIIMS

Issuing notice to Centre and AIIMS, the matter has been listed by the Delhi High Court for hearing with other connected matters on April 13. In the latest development, the...

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Rare Disease Policy: The Need Of The Hour

Globally as well as in India, rare or orphan diseases as they are also known, pose a significant threat not just to the public health system but also to the...

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Press & Media

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Amicus (FOLD) Gets Pompe Disease Treatment Approval in Europe

Amicus FOLD announced that the European Commission approved cipaglucosidase alfa, commercialized under the brand name Pombiliti, for treating late-onset Pompe disease (LOPD) in adults. Cipaglucosidase alfa is a long-term enzyme replacement...

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Govt decision to remove tax on drugs & food to treat rare diseases could benefit 70-90 million Indians

New Delhi: The government has exempted all food and drugs imported for the treatment of all rare diseases from basic customs duty, a move that could potentially benefit 70-90 million...

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Govt gives full exemption to all imported drugs for rare diseases treatment; Industry leaders welcome move

In a landmark move, the central government on Thursday announced that it has given full exemption from basic customs duty on all drugs and Food for Special Medical Purposes imported...

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On March 28, Congress leader and MP Shashi Tharoor shared the story of a young couple who had approached him for exemption of duty on a drug they imported for...

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Digital Portal Launched For Crowd Funding For Patients Of Rare Diseases

Ministry of Health and Family Welfare has written to Department of Revenue for registration of Crowd Funding Portal for rare disease under Section 80G of the Income Tax ActMinistry of...

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Govt move to eliminate sickle cell anaemia a good decision but it may not be easy

The Union Budget presented by Finance Minister Nirmala Nirmala Sitharaman on February 1 included a declaration to launch a project to eliminate sickle cell anaemia from the country by 2047....

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SEC recommends waiver of local phase III and IV trials for Sanofi’s orphan drug to treat Pompe disease

The Subject Expert Committee (SEC) that advises the drug regulator of the country has recommended waiver of local phase III and IV clinical trials in India for Sanofi Healthcare India’s...

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