Ever heard of Congenital Central Hypoventilation Syndrome (CCHS)? This is a rare breathing disorder in which the person’s ability to breathe is compromised. The disease is life threatening as it...
In 2022, Novartis invested around $10 billion in overall research and development (R&D) and has already secured 23 approvals in the United States, European Union, China and Japan for new...
The Union Health Ministry has recently included six rare diseases into various groups of disorders under the National Policy for Rare Diseases (NPRD), 2021, enabling the patients of these diseases...
Issuing notice to Centre and AIIMS, the matter has been listed by the Delhi High Court for hearing with other connected matters on April 13. In the latest development, the...
Globally as well as in India, rare or orphan diseases as they are also known, pose a significant threat not just to the public health system but also to the...
Amicus FOLD announced that the European Commission approved cipaglucosidase alfa, commercialized under the brand name Pombiliti, for treating late-onset Pompe disease (LOPD) in adults. Cipaglucosidase alfa is a long-term enzyme replacement...
New Delhi: The government has exempted all food and drugs imported for the treatment of all rare diseases from basic customs duty, a move that could potentially benefit 70-90 million...
In a landmark move, the central government on Thursday announced that it has given full exemption from basic customs duty on all drugs and Food for Special Medical Purposes imported...
On March 28, Congress leader and MP Shashi Tharoor shared the story of a young couple who had approached him for exemption of duty on a drug they imported for...
