I am 63 years old, and am on this journey for the past 12 years, since I was diagnosed with it after a negative reaction to the Yellow Fever vaccine...
I, Kaushik Basu, am sharing my story with you about my journey with Hereditary Spherocytosis and Gilbert’s syndrome. In class one (2002-2003), my parents noticed I had less than the...
My name is Kriti Pandey, and I am 26 years old. I live with Hereditary Angioedema (HAE) — a rare and often misunderstood disease. My journey has been full of...
MY JOURNEY Dr. Seema Krishna Mane I had Stevens-Johnson syndrome in 2007 when I was doing post MBBS internship. Initial 4-5 days, the disease was not diagnosed and it kept...
Hi, my name is Parthvi Mewada and I’m a survivor of Steven Jonson syndrome. SJS is a very painful and a rare disorder of skin, it affects both skin as well...
My son, 20 years old recently have been diagnosed with two rare diseases NUTCRACKER SYNDROME and MALS SYNDROME (median arcuate ligament syndrome/ celiac artery compression syndrome/ Dunbar syndrome etc.) He...
Surbhi Manocha Choudhary, A #RareDisease Warrior living with #HUVS has broken all #odds to make it to the finals of #MrsFemina. On behalf of Rare Disease community, @ORDIndia.in wishes her...
MVS Sampreet, who has been affected by Duchenne muscular dystrophy (DMD) since birth, is pursuing his MBA from IIM Bangalore. He completed his under graduation from Shri Ram College of...
Rare Disease Warrior; Dr. Sarthak Kamath , during his graduation ceremony was honored today with awards from Dr. Sudhakar, Minister of Health and Family Welfare, while Principal of KIMS, Dr....
