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Duchenne Muscular Dystrophy – SARTHAK GAWRI

LIVING WITH A RARE DISEASE Hello everyone, I am Sarthak Gawri and I am suffering from a rare disease called Duchenne Muscular Dystrophy. It affects muscle strength of the whole...

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Duchenne Muscular Dystrophy – Sarthak Gowri

Duchenne Muscular Dystrophy Sarthak Gowri and His Wonderful Family A Memorable trip to...

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Cornelia de-Lange Syndrome- Manasvini Hari

I know to Eat!!! Hurray!!! By Harish Ravishankar Another milestone to share!!! Over the last few days, we are seeing Manasvini (5+ years now) trying to pick crispy food items...

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Spinal Muscular Atrophy (SMA) – Deeksha Sampath

My Hurdles Hi, I am Deeksha Sampath, nine years old from Bangalore, suffering from a rare disease called SMA; it is killing all my physical abilities day by day. At...

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Spinal Muscular Atrophy (SMA) – Harsh

Spinal Muscular Atrophy (SMA) – Harsh...

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Cystic Fibrosis- AROUBA KABIR

Digging Deep After 21 years of struggling with my condition, I finally got my diagnosis – Cystic Fibrosis. There were many dark days with doctors giving me not more the...

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Alagille Syndrome- Shambhavi Ravishankar

DISCOVERING HOPE The day I realised what hope means was the day I realised that I have never known “good health” on a single day in my life, and that...

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Sturge Weber Syndrome – N Vinayak Venkateshwar

How Chandra solved the mystery of his missing baby brother! [ Narrated by the parents Geetha and ‘Nary’ Narayanaswamy] We visited the US East Coast about five years ago. We...

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GBS FIGHTER FROM INDORE- Jeevan Kaneria

Hello friends, My name is  Jeevan Kaneria and i have been suffering from GBS (Gullian Barry Syndrome) in Indore, Madhya Pradesh India since April 1, 2016. This disease makes the...

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Spinal Muscular Dystrophy

Debosmita Ghosh...

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