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Shame to all those who have not voted.

Look at the spirit of Dhanya, suffering from Rare Disease “BRITTLE BONE DISEASE” for exercising her right in spite of her condition and poor disable friendly infrastructure in this country....

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Rare diseases and Innovation

We must applaud ourselves. We must applaud ourselves because we have toiled and advocated the causes of affordable healthcare and access to drugs. We have fought for cancer and malaria...

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Over 70 mn Indians afflicted with rare diseases

The Foundation for Research on Rare Diseases and Disorders pegs the number of patients in India afflicted with one of more than 7,000 rare diseases at over 70 million. Attempting...

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Why Rare Diseases Need Clinical Research

In 2009, the Hindi movie Paa was released to wide acclaim in India. Starring Amitabh Bachchan, Abhishek Bachchan and Vidya Balan, the film, which focused on a father-son relationship, told...

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There are so many people in India that even patients with rare diseases can be found in sufficient numbers to conduct good scientific research

Michael Hauser,a Duke professor of medicine and ophthalmology, who collaborates with an eye institute in Hyderabad, India to study a childhood form of glaucoma, was quoted in a recent article...

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Endorsement of bill of entry should be restarted as loan licenses are very common in pharma industry

– Daara Patel, Secretary General, Indian Drug Manufactures Association The pharma industry faces a huge problem due to the inverted duty structure, i.e. higher duty on inputs at 12 per...

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Can’t let a poor boy die before our eyes, says High Court

Just because the Centre, State and AIIMS say they are short of funds Just because someone is short of funds, the State cannot allow him to die, the Delhi High...

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One in 20 Indians hit by rare diseases

Nearly 3.7 million of the 70 million suffering from rare diseases are from Karnataka A Hindi movie in 2009 depicted the poignant story of a child suffering from a genetic...

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