Part 1
Details of the 3rd National Chinese Myasthenia Gravis Conference is listed below.
Conference Information
Conference Date: June 14-17, 2018
Conference Venue: Beijing Schonbrunn Hotel
Address: No.125, North Road of West Fourth Ring, Haidian District, Beijing (opposite to the northwest exit of Station Wuluju, Metro Line 6)
Brief Program:
June 13 (13:00-19:00): Registration
June 14 (9:00am): The opening ceremony
June 15-16: Conference
June 17: Outdoor activities (optional)
June 18: Departure in the morning
Participation fees:
Free for all participants. Accommodations will be offered for invited guests. But other expenses (such as transportation fees) are not included.
Who will participate:
1. Medical experts with specialties or clinical experience in MG;
2. Public service organizations, non-profit or non-governmental organizations, or patient groups related to MG;
3. Individuals who are willing to participate in the Chinese MG Conference and work towards improving the living conditions of people affected by MG;
4. Other stakeholders in the field of MG.
Let your voice be heard:
We invite all of our guests to give a short speech on following topics:
1. Work with MG patients, work for MG patients: Share your experience as patient organization founder, staff, or volunteer, share about your organization’s vision and mission, recent goals, activities, achievements, etc. Share stories about local MG communities, healthcare policies, drug and pharmaceutical policies, medical research, social integration, and so on. .
2. Life stories of MG patients
3. Rehabilitation approaches and experience of MG
4. Experience of mutual assistance for MG patients
5. Experience of social integration for MG patients
*Each speech will be about 15-30 minutes, depending on the topic, and will also be presented in a roundtable forum (please prepare PPT if needed).
*Speakers please email us (caili@ailimg.org) with the topic and your resume by MAY 30th, 2018.
*The posters will be presented with paper abstract, lecturer, organization introduction for speakers of medical research/related research on site.
Part 2
Show your support in videos:
Due to the budget limit, we are sorry that we cannot provide travel expenses for all of our participants. We hope you could show your support and share your stories about MG in the form of video. Please use your smartphone or any digital devices to make a short video on anything related to MG that you want to tell, share or express. Please refer to the attached instructions on and feel free to contact us at caili@ailimg.org. Please let us see your face and hear your voice on the 6·15 Myasthenia Gravis Day!
Please remember: Be together, we are stronger!
Here are the basic requirements for the video presentation:
Theme: To live with MG in peace
1. What to be included? In the video, please focus one or more of the questions listed below:What is the current condition of your organization or yourself as a patient?
2. What are the changes of your life after you were diagnosed with MG?
3. How have you dealt with MG?
4. What is your vision of the future?
5. Please use the following sentences as Ending verses On June 15th, the National Myasthenia Gravis care day, please care for people affected by MG .
We want to let you know: If MG cannot be cured , we/I will live with it in peace.
Love will make changes.
What is the format?
Video, shot by iphone or any smartphones, or camera, or any type of video recorders.
*If you are from a MG patient group, please invite more than 5 persons from your group to do it together and make one single video.
What is the submission deadline?
Midnight, May 31th, 2018
Where to submit?
Email: caili@ailimg.org
Skype: sairicai
