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2nd National Patients Advocacy Group Leader Meeting (PAG Meeting)

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Pompe Disease: A Multidisciplinary Approach

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ORDI Co-Organizing an International Rare Diseases and Orphan drugs Conference

ORDI Co-Founder scientist and life sciences leader Dr. Harsha Rajasimha will be delivering a keynote address. All stakeholders of rare diseases and orphan drugs are invited and encouraged to submit...

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World Orphan Drugs Congress

ORDI Co-Founder, scientist and life sciences leader, Dr. Harsha Rajasimha will be joining a great lineup of speakers representing Indian patients interests in rare diseases and orphan drugs Apr 19...

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NIH Rare Disease Day Conference, Bethesda, MD USA

ORDI and research collaborator George Mason University (GMU) had an exhibit table at the US National Institutes of Health (NIH) Rare Disease Day Event on Feb 27, 2017. Five students...

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Racefor7 2017 debut’s at Washington DC, USA

Racefor7 was simultaneously organized in USA and India on Feb 26. The rare disease awareness message was taken to the US Capitol, Whitehouse and Lincoln Memorial. The 7km run was...

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International Rare Diseases Research Consortium (IRDiRC) Conference

Dr. Harsha Rajasimha, Co-Founder, ORDI presented on “Challenges and Opportunities for rare diseases in India, a progress report and lessons from rest of the world.” And “Uniting >70Million patients with...

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ORDI Holiday cocktail party and fundraiser at Herndon, VA USA

ORDI Co-Founder Dr. Harsha Rajasimha organized the first official ORDI USA event at Inchin Bamboo Garden, Herndon, VA. About 12 friends of ORDI participated and donated for the cause on...

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Down Syndrome Day – 2017

Free multispeciality camp for Children with DOWN SYNDROME on March 26 2017 (Sunday) at GeneOmm medical centre, Coimbatore. Specialities Genetics Pediatric Rehabilitation Pediatric Cardiology Pediatric Endocrinology Pediatric Psychiatry Ophthalmology ENT...

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Approach and Challenges in the Diagnosis of Lysosomal Storage Diseases in India

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