On behalf of the Priority Setting Partnership Steering Group, we would like to share a survey questionnaire to set research priorities for liver GSD. Responding will take you max 5 minutes. We ask only GSD patient (caregivers) and health care providers to answer.
https://www.surveymonkey.com/r/IGSDPSP-English
This initiative was presented during the IGSD2017 conference in Groningen. The goal is to set research priorities for liver GSDs.
For more information on the James Lind Alliance visit their website (https://www.jla.nihr.ac.uk).
For more information on this PSP, send an email to igsdpsp@gmail.com or visit our website https://igsdpsp.com.
