Good news and a novel FDA approved treatment for MPS- I Homologous stem cell therapy. Read more: https://www.globenewswire.com/news-release/2020/07/20/2064241/0/en/Orchard-Therapeutics-Announces-Orphan-Drug-and-Rare-Pediatric-Disease-Designations-for-OTL-203-for-the-Treatment-of-MPS-I.html #RareDisease #rayofhope #OrphanDrug...
An article from ” @ The Hindu” today on the scarcity/ unavailability of drugs for #RareDisease patients who are facing loss of #accesstomedicines due to #COVID; supply interruption of #importeddrugs is a threat to...
On the occasion of 7th DNA Day of VIT, 14th March 2020 by Department of Biomedical Sciences, Our Founder Director, Mr. Prasanna Shirol was invited to inaugurate the event as...
Organization for Rare Diseases India (ORDI) has highlighted the importance of creating awareness on Mucopolysaccharidosis (MPS), which is a category of a rare disease. MPS is a part of a...
The Organisation for Rare Diseases India (ORDI), a not for profit organisation committed to address the challenges of rare disease patients and their families, in association with JSS Academy of...
Kochi: The Central government informed the Kerala High Court that it has sanctioned Kerala Rs 1.5 crore for the treatment of people suffering from rare genetic diseases. The fund has...
India has recently completed a six-month pilot project sequencing the genomes of individuals within the nation. Could genome sequencing present a boon to combating rare diseases? Despite the infrequency the term...
Shri. Tejasvi Surya, Member of parliament; Dr. K. Sudhakar, Minister of Medical Education of Karnataka; Smt. Shwetha R Prasad, Actress and Mr. John Dodd, Senior Director- IQVIA flags off Racefor7 Facts about Rare...
