With the significant burden imposed by the life-threatening (mostly progressing) rare diseases, they present a fundamental threat to the health systems. This requires a streamlined approach to ensure a timely...
Prasanna Shirol- Co founder and Director represented ORDI in Roundtable Discussion on Rare Diseases Policy -Deliberating the way forward on 27th July 2019 at India Habitat Centre, New Delhi organized...
Nine Individuals and Organizations from Around the World will be Recognized for Their Positive Impact on the Rare Disease Community, Prasanna Shirol has beed awarded a “Rare Champion of Hope” ...
Rare diseases are severe and chronic illnesses and are often life-threatening. Patients suffering from rare diseases, especially Lysosomal Storage Disorders (LSDs), often lead a very incapacitating life With the new...
It is possible to live a fairly normal life with a rare disease, may be difficult but certainly not impossible. While most of us don’t know much about rare diseases,...
New Delhi [India], Mar 14 (ANI): It is possible to live a fairly normal life with a rare disease, may be difficult but certainly not impossible. While most of us...
Changemaker – Social Transformation They make a difference where it truly matters — transforming the lives of the marginalised and the downtrodden. Bringing about change — both behavioural and attitudinal...
