1 The Hans India https://www.thehansindia.com/news/cities/bengaluru/racefor7-2022-sees-heart-warming-turnout-in-support-of-rare-diseases-731133 2 News Experts https://www.newsexperts.in/racefor7-2022-sees-heartwarming-turnout-in-support-of-rare-diseases/ 3 The Hindu https://www.thehindu.com/news/national/karnataka/top-karnataka-news-developments-today/article65089636.ece 4 Bangalore Mirror https://bangaloremirror.indiatimes.com/bangalore/cover-story/rare-window/articleshow/89877460.cms 5 APN News https://www.apnnews.com/racefor7-2022-sees-heartwarming-turnout-in-support-of-rare-diseases/ 6 Business News This week http://businessnewsthisweek.com/health/racefor7-2022-sees-heartwarming-turnout-in-support-of-rare-diseases/ 7 Online Media...
Swamy C. J., the Head of Operations at ORD (Organization for Rare Diseases) India, had this to say about their experience as a part of the project, “Since ORD focuses...
The Delhi High Court has recently voiced their disapproval of the continued neglect for the treatment of rare diseases. The Court took issue with the fact that funding for treatment...
The International Rare Diseases Research Consortium (IRDiRC) is a global collaborative initiative launched in 2011, aimed at tackling rare diseases through research. Here, we summarize IRDiRC’s vision and goals and...
India, which shares 17% of global population, has finally had its first dedicated policy on making treatment of rare diseases accessible and affordable. by Dr. Dipanjana Datta While rare diseases are...
When his daughter, Meredith Huml, was diagnosed — finally — with facioscapulohumeral (FSHD) muscular dystrophy in 2004, Raymond Huml immediately jumped into action, researching everything he could about the disease and reaching...
Inborn error of metabolism (IEM) is a spectrum of diseases that can affect the normal metabolism in children, said doctors. Screening of newborns or screening of parents during the pre-natal...
