Click the link for website: https://www.thehindu.com/news/national/disquiet-over-govts-new-policy-for-rare-diseases/article34225606.ece...
The Delhi High Court ordered the Centre to finalise and notify the National Health Policy for Rare Diseases by March 31 Rare diseases, as the name suggest, are those diseases...
Attended the UDNI Patient Engagement Meeting, planning how to bring more of the patients’ perspective into UDNI....
Click for the website: https://www.wfmz.com/news/pr_newswire/pr_newswire_health/new-advancements-in-genetic-analysis-for-rare-disease-delivering-accuracy-affordability/article_fc1fafad-8354-5176-8aa1-b7b64f43111e.html ORLANDO, Fla., March 19, 2021 /PRNewswire-PRWeb/ — What is genetic analysis? Genetic analysis is the process of screening a person for the possibility of a genetic syndrome or...
Click for the article: https://www.indiatvnews.com/health/know-what-diseases-fall-under-rare-diseases-category-691930 Know what diseases fall under Rare Diseases category As the name suggests Rare Diseases are those that are less in occurrence than compared to other...
Parents whose only hope was For three years, Vidya tried to find the cause of her son’s recurrent fevers and low cognitive development. When she found out, she was devastated....
India does not have a healthcare policy for Rare Diseases in place, and whatever little benefits exist are only applicable for BPL Families, writes, Prasanna Shirol, Founder Director, ORDI Rare...
Click Below Link: Racefor7: Over 4000 participants virtually unite to raise awareness for rare diseases In the backdrop of 70 million rare disease patients in India, Organization for Rare Diseases...
Episode Description In this episode of the Lead, Prasanna Shirol from the Lysosomal Storage Disorder Support Society India talks about helping those affected by rare diseases. Ahmed Shariff: Hi and...
