Rare disease policy a mockery of right to health, says Bengaluru advocacy group “The NPRD, 2021, is a mockery of the right to health each person in India enjoys. The...
As per Organization for Rare Diseases India (ORDI), the National Policy for Rare Diseases, 2021 abridges the ‘right to health’ by ignoring the true needs of rare disease community in...
“The NPRD, 2021, is a mockery of the right to health each person in India enjoys. The lack of foresight shines through the cold and thoughtless draft,” said Prasanna Shirol,...
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Pune, April 5, 2021: While the Central Government recently announced the National Policy for Rare Diseases, 2021, it has been observed that the policy has failed to define rare diseases...
Beneficiaries for such financial assistance will not be limited to BPL families, but the benefit will be extended to about 40 per cent of the population who are eligible under...
Click the link for website: https://www.thehindu.com/news/national/disquiet-over-govts-new-policy-for-rare-diseases/article34225606.ece...
The Delhi High Court ordered the Centre to finalise and notify the National Health Policy for Rare Diseases by March 31 Rare diseases, as the name suggest, are those diseases...
Attended the UDNI Patient Engagement Meeting, planning how to bring more of the patients’ perspective into UDNI....
Click for the website: https://www.wfmz.com/news/pr_newswire/pr_newswire_health/new-advancements-in-genetic-analysis-for-rare-disease-delivering-accuracy-affordability/article_fc1fafad-8354-5176-8aa1-b7b64f43111e.html ORLANDO, Fla., March 19, 2021 /PRNewswire-PRWeb/ — What is genetic analysis? Genetic analysis is the process of screening a person for the possibility of a genetic syndrome or...
