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The results of genetic tests are not always straightforward, which often makes them challenging to interpret and explain. Therefore, it is important for patients and their families to ask questions...
Disease Profile ORDI sees NPRD 2021 lacks focus on ailing patient affordability calls to rely on crowd funding Our Bureau, Bengaluru Wednesday, April 7, 2021, 12:30 Hrs [IST] Organization for Rare...
Rare disease policy a mockery of right to health, says Bengaluru advocacy group “The NPRD, 2021, is a mockery of the right to health each person in India enjoys. The...
As per Organization for Rare Diseases India (ORDI), the National Policy for Rare Diseases, 2021 abridges the ‘right to health’ by ignoring the true needs of rare disease community in...
“The NPRD, 2021, is a mockery of the right to health each person in India enjoys. The lack of foresight shines through the cold and thoughtless draft,” said Prasanna Shirol,...
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Click below link https://www.thehindu.com/opinion/editorial/a-good-start-the-hindu-editorial-on-government-support-for-continual-treatment-of-those-with-rare-diseases/article34239498.ece Fund support from government is vital for continual treatment of those with rare diseases It is binding on a welfare state to take care of every...
