Aimed at raising money for treatment of rare diseases that need expensive and life-long treatment and affect a small percentage of the population News:- 1)Platform launched on August...
We appreciate the kind assistance of Ms.Shruti Mohanty, Ms.Tulisa Samantaray, and Ms.Ushneet Chhabra, MSc BMG, VIT, Vellore for the posters on SATB2 Associated Syndrome Awareness...
We acknowledge the kind assistance of Ms. Poorva Samdani,Ms. Vaishnavi. R, MSc. BMG, VIT, Vellore for the poster on Smith Kingsmore Syndrome Awareness...
We acknowledge the kind assistance of Ms. Anandi Shivaram and Ms. Panchami P, MSc. BMG, VIT, Vellore for the poster of Severe Myalgic Encephalomyelitis Awareness...
8th August is celebrated as the #Chromosome8p day, a rare chromosomal disorder caused by deletion of a part of chromosome 8. Let’s join hands in spreading awareness about this disorder...
PARIS – August 6, 2021 – The U.S. Food and Drug Administration (FDA) has approved Nexviazyme® (avalglucosidase alfa-ngpt) for the treatment of patients one year of age and older with late-onset Pompe disease, a progressive...
31 st of July is marked as the Acute Nectrotizing encephalopathy or #ANEawareness day. This day aims to spread more awareness and better understanding about this rare disease so that...
We appreciate the kind assistance of Shruti Mohanty, Ushneet Chhabra, Anushka Priyadarshini Chatta, Tisha Kalpeshbhai Desai and Tulisa Samantaray.MSc BMG, VIT, Vellore for the poster on Autoimmune...
We appreciate the kind assistance of Ms. Sayantani Sarkar, Ms Kajal Kumari, Mr. Shilpa Sucharita and Ms. Saptaparni Dutta, students of MSc Biomedical Genetics at VIT, Vellore for the poster...
The drug is approved for the treatment of SMA in adults and children 2 months of age and older, Roche said adding that it was approved by the Indian health...
