Pune, April 5, 2021: While the Central Government recently announced the National Policy for Rare Diseases, 2021, it has been observed that the policy has failed to define rare diseases...
Dr Harsh Vardhan, Union Health & Family Welfare Minister approved the “National Policy for Rare Diseases 2021” on 30th March 2021. For quite some time different stake holders have been demanding...
Beneficiaries for such financial assistance will not be limited to BPL families, but the benefit will be extended to about 40 per cent of the population who are eligible under...
Click the link for website: https://www.thehindu.com/news/national/disquiet-over-govts-new-policy-for-rare-diseases/article34225606.ece...
Kids with the unique “duplication mutation” usually lose their ability to walk around 12 years old. For the first time in a live animal, researchers have successfully reversed a gene...
The Delhi High Court ordered the Centre to finalise and notify the National Health Policy for Rare Diseases by March 31 Rare diseases, as the name suggest, are those diseases...
Click Below Link: India’s healthcare system needs a concrete rare disease policy The Delhi High Court ordered the Centre to finalise and notify the National Health Policy for Rare Diseases...
Click below link: https://www.outlookindia.com/newsscroll/kerala-seeks-centres-assistance-in-matching-grant-to-expand-treatment-to-more-rare-disease-patients/2053240 Thiruvananthapuram, Mar 25 (PTI): As the Ministry of Health and Family Welfare is finalising the long-pending National Policy on Rare Diseases, the Kerala state health department...
Attended the UDNI Patient Engagement Meeting, planning how to bring more of the patients’ perspective into UDNI....
Click below link: https://www.indialegallive.com/constitutional-law-news/courts-news/delhi-high-court-inter-ministerial-group-rare-diseases/ ...
