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Charcot Marie Tooth (CMT)

Charcot-Marie-Tooth disease (CMT) is a group of inherited neurological disorders that affect peripheral nerves. It leads to muscle weakness, atrophy, and sensory loss, typically starting in the feet and legs...

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1st Neuro Fibromatosis Day 17th May 2023 AIIMS New Delhi by ORDI – AOCN

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ORDI News letter Oct 2022

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Preethu, who conquered SMA by becoming a CA, is no more

Kochi: Preethu Jayaprakash, 28, who became a Chartered Accountant by fighting the permanent disability arising out of the rare genetic disorder Spinal Muscular Atrophy (SMA), finally succumbed to her injuries...

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World Vitiligo Day

World Vitiligo Day aims to raise awareness on #Vitiligo, a rare condition. Join us in breaking barriers and embracing the vitiligo warriors. #WVD2021. We appreciate the kind assistance of Ms....

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On International Pompe Day, Pompe Foundation presents a captivating session on ‘Pompe: A rare disease”.

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RD Advocate: Alagille Syndrome

Ms. Shambhavi Ravishankar  Shambhavi lives with a rare disease called Alagille Syndrome, which was diagnosed as a child. Her commitment to fighting for the rights of persons living with rare...

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Suggested Guidelines for Rare Disease Patients in India during COVID 19 Pandemic

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It’s not just Blood! It’s a life Saving Liquid – 8th May

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Vasculitis Awareness Month

  The month of May being Vasculitis Awareness month, ORDI takes this opportunity to spread awareness about this rare, but often serious autoimmune disorder-VASCULITIS and help the Vasculitis warriors in...

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