Click here to watch the video of a boy with rare disorder who overcomes the...
Lysosomal Storage Disorders Support Society (LSDSS) has asked the state government to create corpus fund from the annual state budget for better diagnosis and treatment of rare diseases. LSDSS president...
On behalf of the Priority Setting Partnership Steering Group, we would like to share a survey questionnaire to set research priorities for liver GSD. Responding will take you max 5...
Charitable Access Program application link for 2017 is now activated. The link for the actual application is https://app.wizehive.com/apps/login/shire2017 Click here to download the application instructions. The application deadline is September...
Calling for better health research in India, health experts, including those from the All India of Institute of Medical Sciences (AIIMS), on Wednesday said that innovations in medicine alone can...
My wife Merlyn Joseph was a positive person. She would never sit and grieve when faced with trouble. She knew how to laugh when in pain. After she was diagnosed...
